300 people with Lyme disease will file a criminal complaint in early January. Complaints of influence peddling, abuse of social property and concealment of abuse of social good, endangering the lives of others, violation of the principle of independence of experts and the principle of absence of conflict of interest . Lyme disease is this bacterial infection caused primarily by a tick bite. Unpublished, this complaint concerns the State, the National Agency for Safety of Medicines and Health Products (ANSM) and the National Reference Center (CNR) of Strasbourg. This complaint aims in particular “to uncover the links of interests maintained between the National Reference Center of Strasbourg and the laboratories”. The complainants believe that screening tests are unreliable.
The director of the National Reference Center in the viewfinder
A man crystallizes all the tensions: the director of the CNR, expert mandated by the State and the ANSM, who also collaborates with the laboratories that manufacture these tests and participates in the validation committees of the tests. It could be charged with criminal offense, influence peddling, corruption and misuse of corporate assets. The plaintiffs therefore also target the state and the ANSM, for endangering the lives of others and manslaughter (patient suicides), but also lack of vigilance in the choice of experts and the quality of tests.
According to Maître Julien Fouray, one of the plaintiffs’ lawyers with Me Catherine Faivre, the health authorities “did not play their role of supervisory or regulatory authority, but actually became employees of the pharmaceutical industry. We can not admit it because today there are tens of thousands of patients who have not been diagnosed and who are for many of them in absolutely catastrophic medical, material and moral situations. and by imposing a single testing technique, a single screening protocol and favoring a certain number of laboratories, it is forbidden on the one hand that there may be doubt or discussion about the reliability of these tests, but of on the other hand, other tests for Lyme disease.”
Today, the Elisa test is used to find out if a patient has Lyme disease. Elisa is the only test that exists in France to detect the disease. If it is negative, the exams stop there for the patient. If it is positive, the doctors give a second test to the patient, much more precise, the Western Blot. Except that the first test detects only 3 to 5 different bacteria that can cause Lyme whereas there are more than ten in reality. To find out if they have Lyme or not, some patients have to go to veterinary tests, much more accurate, or go to other countries like Germany, where the tests are more advanced.
Some doctors do not stop at the negative test and continue to see patients to determine if they have Lyme or not, but they are then sued by the College of Physicians and Health Insurance for non-compliance. The lawyers therefore ask for the withdrawal of these tests that they consider “absurd”.